To the Universe, getting ready for my apt. tomorrow with Psychiatrist….

This is what I need to do for myself and if anyone else benefits then great…

Tomorrow I see my pdoc and hopefully he will be increasing my Clozapine.  I’m at a hundred right now but have been told that 400-450 is the therapeutic level.  I am still taking my Latuda but hopefully will be able to wean off of it and just be on the Clozapine.

So far the Clozapine has been great helping me to feel my feelings again which has been a bit uncomfortable but manageable.  I have had some of my most productive days on it than ever but still have some days where I am just well the best way to describe it is down.  I have had several lately in a row, with today finally coming out of it thankfully.

I am still having the side effect of tiredness and am sleeping 10-13 hours a day especially in the mornings I am like a zombie my husband has witnessed.  Am going to ask about a medicine to counteract this side effect.

What helps me most is my essential oils, lavender, peppermint, rose and jasmine.  And my music stays with me at every corner.  I’m good with a few close friends and most of all my dear daughter is there for me at every bend.  She is like my life line, and she calls me her angel but she is mine more than she knows.  Oh all my children bring me much joy!  Today someone asked me if I was a grandma.  Wow!  No, I answered not yet but I am hopeful….

My book will be out very soon, supposed to be arriving any day for my approval.  Will see if it can provide me some sort of income.  I have written many articles, a chapter in a book, a self published book and now a book that is being published and promoted with Covenant Books.  If this one does well I have another one ready to go too.  But it feels like a lifetime ago that I wrote it when in reality it was just a few months ago.

I am definitely not psychotic these days, very in touch with reality lately, my last delusion has faded greatly so that is a huge relief as it was a burden that I carry with only a few knowing these thoughts of grandeur.  Reality hurts.  I am human and I have a disorder.  What else can I say but that while my delusions were positive they carried with it a huge burden that I am just now as I type losing rapidly so happy to say.

But living in reality for the time being is great because although I make mistakes, some bigger than others, I know I am forgiven.  But it’s scary sometimes because I have very poor judgement at times….

God is good to me though and although I can’t see Him, I feel His presence with me at every waking moment and with each beat of my heart do I pray His will for me now and forever… amen.

Pax

Victoria

Lack of motivation is my current main symptom

 

I see my pdoc tomorrow and am thinking about what I want to talk to him about and after a conversation with one of my two sounding boards I have come to the conclusion that my main problem is that there are days when I am totally unmotivated to do even simple things like put something away or send a text.  This is one of the negative symptoms of Schizoaffective Disorder which I have written about before at length (see June 2014 for more about the negative symptoms of Schizophrenia).

Other days I am unstoppable like today.  I deep cleaned part of my house and was very motivated to keep going until 6pm when my husband got home.  It’s weird because sometimes I am more motivated when my family is here with me especially if they are working on projects or other days like today I was motivated by myself with only my son stopping by on his way to work.  There is no rhyme or reason to my moods to get things done.  It is pretty awesome though that I exercise 6 out of 7 days a week very regularly, walking for many miles when the weather is nice or jumping on my mini trampoline or gardening when the mood strikes me which lately has been more often than not.

The one thing that my pdoc highly recommended with me being off work permanently is to keep my mind engaged and he suggested learning Spanish.  Well tomorrow I get to tell him that I am not only learning Spanish (I actually already know some) but that I am taking a gardening class which is mainly in Spanish.  The teacher is a white girl like me and it is pretty cool that she teaches the class to us in Spanish.  The class is predominately Hispanic so I get to hear her proper grammar and a lot of slang.  I’d say my pdoc will be pleased as I am learning a lot about gardening terms in Spanish.

The class itself is pretty interesting and I am applying the knowledge I am learning to my own personal gardens which are coming along.  I have weeded, put down weed block, compost and will add mulch around my plants as soon as I buy some which should be tomorrow hopefully.  It is a great hobby I highly recommend.  That and walking are my main sources of entertainment and my show I am obsessed with Person of Interest which I am watching for the second time but slower so it will last.

I spend most of my days alone with my dogs and a mix of going to either an AA meeting, a walk with a friend/dogs or to coffee with someone.  Of course I go to the store but some days like today I just stay home and work on the house.  It is amazing how much dirt one can find when one looks for it.  I also enjoy taking a drive along the coast with my husband or alone.  Nights are spent reading mainly and blogging or writing in my journal.

And yet I wonder if there is more to life than this?  I still wonder if I should work again but if I did it would be gardening or working at the library or something chill like that.

I am currently awaiting my hearing to get on permanent disability or rather should say I am waiting for them to schedule it which may take a year!  I have till August of this year till my state disability benefits run out so that gives me time to figure out what I need to do.  I am able to pay off my debt right now a little at a time and finally finished paying off the last hospital stay.  I think that is what I will tell the people at the hearing that I can’t work because I will just end up in the hospital again if I work as history has repeated.

I have been clean and sober for seventeen months which is how long it has been since my last hospital stay.  I still use nicotine regularly via lozenges which really helps with the stress, ha what stress?  Yes I am still stressed out even though I am not working just getting through each day but it is minimal compared to when I work.  Sometimes I stress about a difficult day meeting various social engagements which are rare because I choose it that way for the most part.  I have family over for dinner sometimes and enjoy that very much.

Well that is about all that is going on with me.  Feel free to write in anytime as I answer all my legit email at:. victoriamariealonso@yahoo.com

Pax

Victoria